Our daughter, Lily Grace, was born to heaven on June 6, 2010. She was diagnosed with alobar holoprosencephaly (HPE) and a rare arrangment of trisomy 18 (isochrome 18q). To learn more about our experience, you may want to start at the beginning. Read Lily's Story: from Beginning to End, which is one of the first blog entries on June 24, 2010.


He heals the brokenhearted and binds up their wounds. Psalm 147:3

Therefore we do not lose heart. Though outwardly we are wasting away, yet inwardly we are being renewed day by day. 2 Corinthians 4:16-18

He will cover you with his feathers, and under his wings you will find refuge; his faithfulness will be your shield and rampart. Psalm 46:1


Monday, June 6, 2011

Birthday Girl

My dearest Lily,

Happy 1st Birthday baby girl!! We had such a great time celebrating you and your life on your birthday! Mommy misses you terribly, but I tried really hard to stay focused on making today a celebration of you rather than a time to mourn your absence. We spent the evening with your grandparents, aunt, uncle, and cousins. They all came together just for you, to celebrate you. We each wrote you a message on a pink balloon to send to you in heaven. I hope you received each one of them. You know, your brother was adamant about sending you a green balloon from him since that is his favorite color. He had such fun drawing pictures and writing messages to you on his very special balloon. He knew that it would reach you in heaven, and he was intent on watching it soar until he couldn't see it anymore . It brought tears to my eyes to hear him acknowledge that it was on it's way to heaven to be with you. I am so proud of him for understanding where you are and knowing that you are with Jesus, who loves you and protects you. After all, this is what brings us peace everyday.

I look forward to every occassion that we can celebrate you Lily! Your life has meant so much to me, and I treasure every single memory that I have of my time with you. I've expressed so many times what you have done for me. Your short time here with me gave my entire life meaning. You brought me closer to the things that are most important in this world. You have taught me more than I could ever imagine that I would have taught you. You have been such an inspiration and source of strength for me.

I look forward to the day that I will see you again, but in the meantime, I remain grateful for your life and your influence on me. You know that Daddy, Owen and I are preparing to meet your baby sister really soon. I am really looking forward to seeing her and holding her because I believe that she will remind me of you. I imagine that the two of you would have had so much in common, and that you may even look a lot alike. I'm sure I will think of you often as I watch her grow and develop. She will be a very special reminder to me of you in so many ways. You have both brought such precious and significant meaning to each other's lives in my eyes. Although it is still sad for me to think that you had to join Jesus before she could come into our lives, the two of you will always be my very special little girls.

I pray that you felt the love of your family on your birthday as much as we all felt your presence with us. The same God who loves you and holds you close has been watching over us to offer us comfort and strength when we feel weak. He is our common bond, and it is through Him that I feel most connected to you. You consumed my mind and heart all day long, just as you have so many other days throughout this past year. You are always loved, and will never be forgotten.

Remember Psalm 23: 4 Even though I walk through the valley of the shadow of death, I will fear no evil, for you are with me; your rod and your staff, they comfort me. Your Uncle Steve introduced this verse to me through music. He used to sing it in church, and it has always had special meaning to me. It is a song that I now think of you when I hear. Lily, God never lets go. He is always there, and I will be too. I love you to pieces.

Happy Birthday sweet baby girl!

Love always,
Mommy

2 comments:

  1. I adore that green balloon. I am sure Lilly loves it even more and treasures her letters. Happy birthday Lilly.

    ReplyDelete
  2. Wendy, that was very special to celebrate Lilly's birthday. I bet she was very excited & happy. Just had to drop you a line to let you know that was very touching to me. God Bless & take Care. Gale Kelley

    ReplyDelete