Our daughter, Lily Grace, was born to heaven on June 6, 2010. She was diagnosed with alobar holoprosencephaly (HPE) and a rare arrangment of trisomy 18 (isochrome 18q). To learn more about our experience, you may want to start at the beginning. Read Lily's Story: from Beginning to End, which is one of the first blog entries on June 24, 2010.


He heals the brokenhearted and binds up their wounds. Psalm 147:3

Therefore we do not lose heart. Though outwardly we are wasting away, yet inwardly we are being renewed day by day. 2 Corinthians 4:16-18

He will cover you with his feathers, and under his wings you will find refuge; his faithfulness will be your shield and rampart. Psalm 46:1


Sunday, December 25, 2011

Merry Christmas!

Merry Christmas my sweet baby girl!! This was the second year that you celebrated Christmas with Jesus. I missed you tremendously and wished that you could have been here with me and Daddy and your brother and sister. The joy on their faces was magical as they both took in the wonder of Christmas day. I can only imagine the experience that you have every day to celebrate not only Jesus' birth, but also His everlasting life. What a gift!
Speaking of gifts, we have added four new ornaments to our tree just for you! You are such a huge part of my heart, and it just isn't Christmas to me without thinking of you. I love having these reminders of you on our Christmas tree. I often gaze at our tree and admire all of our oraments as each one seems to have some significace or special meaning, especially yours. A couple of donations were made for you this Christmas to the Trisomy Foundation, which brings me such joy! While you are on my mind and in my heart every day, you have other family and friends who love you too.
I'm thinking of you always, and remembering you a lot today. I love you Lily!