Our daughter, Lily Grace, was born to heaven on June 6, 2010. She was diagnosed with alobar holoprosencephaly (HPE) and a rare arrangment of trisomy 18 (isochrome 18q). To learn more about our experience, you may want to start at the beginning. Read Lily's Story: from Beginning to End, which is one of the first blog entries on June 24, 2010.


He heals the brokenhearted and binds up their wounds. Psalm 147:3

Therefore we do not lose heart. Though outwardly we are wasting away, yet inwardly we are being renewed day by day. 2 Corinthians 4:16-18

He will cover you with his feathers, and under his wings you will find refuge; his faithfulness will be your shield and rampart. Psalm 46:1


Wednesday, November 17, 2010

STAR group

Tonight will be the first STAR group meeting! I couldn't be happier that the hospital has been able to accomodate the start of this group again after taking a little break from it. I am hopeful that those who choose to come tonight will feel supported and understood. And, of course, I am looking forward to a good excuse to talk about my little angel. Naturally, I'll post an update to debrief about my experience a little later.
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1 comment:

  1. AnonymousNovember 17, 2010 at 8:45 PM

    I wish I was at work tomorrow to hear about this! Karen

    ReplyDelete

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