Our daughter, Lily Grace, was born to heaven on June 6, 2010. She was diagnosed with alobar holoprosencephaly (HPE) and a rare arrangment of trisomy 18 (isochrome 18q). To learn more about our experience, you may want to start at the beginning. Read Lily's Story: from Beginning to End, which is one of the first blog entries on June 24, 2010.


He heals the brokenhearted and binds up their wounds. Psalm 147:3

Therefore we do not lose heart. Though outwardly we are wasting away, yet inwardly we are being renewed day by day. 2 Corinthians 4:16-18

He will cover you with his feathers, and under his wings you will find refuge; his faithfulness will be your shield and rampart. Psalm 46:1


Tuesday, August 31, 2010

A picture says 1000 words


My adorable 4 year old niece, Caroline, recently made this for me. She seemed so excited to present it to me, and as I told her how beautiful it was and how much I loved it, I realized that the portrait she made of me was crying. I don't really recall crying in front of her, but it is possible that I did because several weeks of my life are now kind of a blur. Once she left the room, I curiously asked my sister if she knew why she chose to draw tears on my portrait. She had also noticed this and when she asked Caroline about it, she simply replied it was because of the baby. Wow. Even a 4 year old is perceptive enough to understand how much of an impact Lily has made.
Lily is so lucky to have such loving and thoughtful cousins! This is definitely going in Lily's box of memories. Thank you sweet Caroline- I love you lots!!

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