Our daughter, Lily Grace, was born to heaven on June 6, 2010. She was diagnosed with alobar holoprosencephaly (HPE) and a rare arrangment of trisomy 18 (isochrome 18q). To learn more about our experience, you may want to start at the beginning. Read Lily's Story: from Beginning to End, which is one of the first blog entries on June 24, 2010.


He heals the brokenhearted and binds up their wounds. Psalm 147:3

Therefore we do not lose heart. Though outwardly we are wasting away, yet inwardly we are being renewed day by day. 2 Corinthians 4:16-18

He will cover you with his feathers, and under his wings you will find refuge; his faithfulness will be your shield and rampart. Psalm 46:1


Monday, September 27, 2010

Annapolis Bound

Duran and I are headed to Annapolis tomorrow afternoon to be part of a group designed for parents who have had a high risk pregnancy due to chromosome or genetic abnormalities. We are both looking forward to having the opportunity to see our genetic counselor again, and to be able to talk to other parents who have shared our pain. We're excited to have a forum to talk about our daughter and our experience.
Although I have many positive associations with Annapolis in general, it is the place that we learned about Lily's diagnoses for the first time, and the place we are now traveling to talk about how this experience has forever changed us. Now, I may always associate Annapolis with my sweet baby girl. I'm hopeful that tomorrow will be a good day. I'll let you know how it goes.
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1 comment:

  1. MaryBSeptember 28, 2010 at 5:27 PM

    I was wondering about your FB post but did not get a chance to ask you. I hope that this experience is all you hope and desire it to be.

    ReplyDelete

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